Lyme Light Radio with Guest Host Mara Williams: Guideline revision. What do patients want? With Lorraine Johnson, CEO LymeDisease.org
05/06/2015 01:00 pm PST
The IDSA has just announced that it is revising its guidelines. Its process excludes patients with Lyme disease, physicians who treat them, and even researchers who do not adhere to the IDSA viewpoint that Lyme disease is â€œhard to catch and easy to diagnose and cureâ€. LymeDisease.org launched a patient survey on what patients who have Lyme disease value and find important. Over 6,000 patients responded in one month. LDo also filed comments with the LDA on behalf of over 90 patient groups. Lorraine discusses the guideline revision process and how it differs from the process for developing guidelines by ILADS last year.
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Lorraine Johnson MDA
Lorraine Johnson, JD, MBA, is the Chief Executive Officer of LymeDisease.org. She is an attorney advocate on issues related to the medico-legal and ethical aspects of Lyme d...Find out more »